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Stage 5: Working with patients and carers to monitor services
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Patient Leadership: A Revolution in the Making
Posts
Mental Health
The Five Relational Spheres – an offer for mental health awareness week, and beyond.
- 13 May 2024
Patient as Partners for Change
When Elephants Fight: How patient engagement could help the Junior Doctor dispute
- 18 January 2016
Patients and Data: Changing roles and relationships
- 25 August 2015
The Rep Trap: The Catch 22 of being a patient representative
- 24 August 2015
Beyond Us and Them: The role of patients in governance and improvement
- 24 August 2015
Patient Leadership
Hole in the Policy Bucket – Patient Voice in Decision Making
- 24 January 2023
Activism and the Ego – how to deal with frustration about lack of change
- 11 January 2022
Patient Directors –The Next Step in The Patient Revolution
- 27 April 2021
Australia and New Zealand Consumer Health Forum interview
- 30 March 2021
Reflections on Patient Leadership
- 30 March 2021
Leading from every angle except the top…Participating in the Patient Leadership Training Programme (Guest Post)
- 8 March 2021
Patient Leadership is elitist: Discuss
- 5 February 2021
Trying to Model Patient Leadership Behaviour – a 2021 resolution
- 31 December 2020
2020: A Good Year For The Roses (and for Patient Leadership)
- 13 November 2020
The Engagement Industry
- 22 January 2015
Poetry
Bug Man: Different sorts of poems about mental illness
- 30 March 2016
Reflections on being a Patient Director
David Gilbert: Patient as expert
- 24 January 2016
The Letter: How a Patient Director can help integration
- 19 July 2015
Stories from my own experience
Car parking is a clinical quality issue
- 25 June 2015
Uncategorized
Not Dead Yet: why we should use the word ‘endurance’ rather than ‘resilience’.
- 23 September 2021
Patient Leadership is elitist: Discuss
- 5 February 2021
You have to be three times as good... Michael Seres
- 1 June 2020
Patient Leadership is Dead – Long Live Patient Leadership (a sideways look at Covid)
- 14 April 2020
Patient Leadership Could Help Solve Workforce Issues
- 30 November 2019
From Job-Job to Rock n’Roll-Role – The Sussex Model of Patient Partnership
- 23 November 2019
The Patient Will See You Now - Small steps towards valuing yourself
- 14 November 2019
Valuing What We Bring - an open letter to NHS England
- 16 October 2019
Join The Docs - A patient perspective on integration
- 19 August 2019
The Patient Revolution - why I wrote the book
- 28 June 2019
Simple Is Not Easy - why changing stuff in the NHS can be so damn hard...
- 18 June 2019
Rethinking Engagement
- 7 April 2019
Sometimes A Man - Reflections of a Patient Director
- 7 March 2019
ReWrite - Creative Approaches to Engagement
- 29 October 2018
The Weakness In Me (is no weakness at all) - a message for World Mental Health Day
- 7 October 2018
Asking The Wrong Question: 'How Can People So Cheerful, Talented and Beautiful Kill Themselves?'
- 29 July 2018
ReVerse - How poetry can make the NHS better
- 27 May 2018
Improvement - It's Bloody Hard Work!
- 4 May 2018
Don't Be Scared To Show You Care - how to respond to a loved one with mental health problems
- 15 April 2018
The Re-Balancing Act – recent mental health problems, 'recovery' and living in a mad world
- 12 April 2018
A personal message to friends and colleagues
- 2 April 2018
ABG - Three Ways I Try To Cope
- 26 March 2018
Another Year of Working on What Matters - a Patient Director Healthcheck
- 17 February 2018
Tangled - a modern tale about the NHS Crisis
- 6 January 2018
The Gang Is Still Here - Why 2017 was the year of Patient Leadership
- 27 December 2017
Beyond The Asylum Mentality – why now is the time for dialogue in mental health
- 14 December 2017
Throwing a Sickie - why I am pleased to have been honest
- 6 December 2017
Hugs and Drugs - The limitations of 'mental health awareness'
- 8 October 2017
When My Words Went Elsewhere - true co-production across arts and health
- 24 September 2017
Patient Leaders – what does that mean?
- 14 September 2017
The Broken Compass – Personal reflections on control, meaning and choice in mental health
- 25 August 2017
FAQu - some answers that patient partners can use when they get asked the same old questions
- 18 August 2017
The Road From Nowhere – How Patient And Carer Partners Are Changing Healthcare
- 29 July 2017
What Matters Matters – How my psychiatrist got it right (after so many got it wrong)
- 9 July 2017
Happy Birthday Me - Musings of a Two Year Old Patient Director
- 9 June 2017
It's About Time - why we need a 'slow-health movement'
- 25 May 2017
Let's Talk About Death - breaking the taboos that surround suicide
- 14 May 2017
For My Tired Friends - don't give up!
- 4 May 2017
Let's (Not) Talk About Depression
- 29 April 2017
It's Not All About You - why we need new stories about healthcare
- 17 April 2017
The Forgotten - how non-clinical staff are the key to a better NHS
- 5 April 2017
What's Stopping You Appointing A Patient Director? An open letter to all healthcare organisations
- 23 March 2017
When Elephants Fight: Time for honest discussions (with patients and citizens) about the NHS
- 14 February 2017
This Coldest Day - testimony for a kind soul
- 12 February 2017
The Jewel Merchants - a parable for healthcare
- 27 January 2017
What's Your Dog? Dealing with 2017 and all that
- 8 January 2017
A Touch On The Arm: returning to work after mental health problems
- 21 December 2016
How To Be Unhappy (and why we should be)
- 17 November 2016
If I Still Scream - Three Reasons Why Trumpism Hurts
- 10 November 2016
Let's Talk About Power - Here Come The Patientistas
- 19 October 2016
The Difficult Art of Returning to Work after Mental Health Problems
- 9 October 2016
Gazza's 'moment of madness' ... And mine
- 17 September 2016
The Hedgehog - What happens when policy making is driven by fear
- 16 September 2016
Dear Friend - a letter to Patient Leaders
- 14 September 2016
Is It Worth It?
- 21 August 2016
Say It: I Still Have Mental Health Problems
- 19 July 2016
What If? Patients as Partners for Change
- 18 June 2016
Patient As Refugee
- 30 May 2016
My Imperfect Blog - How to be a good enough Patient Director
- 15 May 2016
Junior Doctors and the Dishwasher Dispute
- 28 April 2016
Patient and Public Engagement for Real: What we are doing at the Sussex MSK Partnership
- 23 April 2016
What Does a Patient Director Do?
- 9 April 2016
Stop Kicking The Cat: How patients can help shift the rule-bound culture of the NHS
- 13 February 2016
Why Do You Do? The real question you need to answer
- 30 January 2016
Simple Isn't Easy - changing the way the NHS communicates with patients
- 11 January 2016
Blame It On The Wine: Daring to talk about the future of the NHS
- 4 December 2015
How Real Can You Be? (Or: the director who cried in the toilet)
- 24 October 2015
Five a day (plus one): Small ways we can all contribute to a better healthcare culture
- 17 September 2015
A Digital Idiot's Thoughts – and a few other random reflections
- 11 September 2015
Slow Down: A paradoxical way to transform healthcare services
- 6 September 2015
The Hawk: Being clear about what I came here to do as a Patient Director
- 31 August 2015
NHS Survival: Why I won't be joining the club (yet)
- 20 August 2015
Patients and Pastries Included: Why we need partnership in policy making
- 31 July 2015
Getting Serious: How a Patient Director can help focus the NHS on what matters to patients
- 18 July 2015
Good Death, Bad Death: Notes for my mum and dad
- 14 July 2015
Being Weird: The Plight of Patient Leaders
- 4 July 2015
Integration: what a Patient Director could do to help
- 24 June 2015
In Through Out - my mental health poetry journey
- 14 June 2015
Being Valued: What I learned during my first week as a Patient Director
- 9 June 2015
The Patient's Dozen - What Matters to Patients and Carers
- 14 May 2015
Patient as Hero
- 3 May 2015
Paying the Price: The Emotional Labour of Patient Leadership
- 26 April 2015
Seven Things that Patients Bring: The Benefits of Patients as Partners for Change
- 22 March 2015
I Should Co-Co: time for patients to say no
- 17 February 2015
No More Eddies: Hitting the Suicide Target and Missing the Point?
- 4 February 2015
Beyond Them and Us: How Patients Can Help Improve Healthcare
- 27 January 2015
Just In Case: Patient-Led Solutions to the A&E problem
- 7 January 2015
Patients As Pus: Why the discharge process needs to change
- 16 December 2014
The Rep Trap
- 5 December 2014
We Are All Patients. Yes And No.
- 28 November 2014
Thankyou Mandy et al - How small acts of kindness from non-clinical staff helped me recover from mental health problems
- 4 November 2014
Patients and Data – Changing roles and relationships
- 26 October 2014
No More Lazy Thinking - Let's get clear on the benefits of patients being partners for change
- 24 October 2014
Ideas From Patients - how patient-led innovation could work
- 20 October 2014
The Future Patient – A manifesto for patient-led health and healthcare
- 4 October 2014
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