Patient Leadership signals a breakthrough in healthcare that moves beyond traditional engagement and uncovers the pioneering and transformative work of patient leaders - those affected by life-changing illness, injury or disability who want to lead change in the healthcare system. Or ‘those who have been through stuff, who know stuff, who want to change stuff’.
About this programme
The programme is designed for both patients and non-patients to explore together different facets of this emerging social movement. It is for Patient and Carer Leaders, health professionals, managers, non-clinical staff and those from the independent, voluntary and charitable sector. And open to international attendees.
This programme lays the foundations for understanding patient leadership. It leads you through the principles of patient leadership, what it is and where it came from, the qualities of an effective patient leader, support needed and models of embedded patient leadership. For patients, users, carers and staff (clinical, managerial).
The course framework
The four 3-hour sessions take place on consecutive Wednesdays, between 4pm and 7pm UK time. Each session includes scheduled time for breaks from the screen.
Session 1 - What is Patient Leadership
- The different tributaries of the ‘patient movement’
- The failure of traditional engagement approaches
- The emergence of ‘patient leaders’
- Definitions and clarifications
- What we bring - Jewels of wisdom and insight from the caves of suffering
Session 2 - The Effective Patient Leader
- The Different Roles for a Patient Leader
- What Matters – an anchor for the effective Patient Leader
- Benefits of Patient Leadership
- The four main capabilities
- The different sorts of support needed
Session 3 -
Embedding Patient Leadership in Healthcare
- The Patient Leadership Triangle (the Sussex MSK Model)
- The Patient Director – a new role in healthcare
- Culture, systems and processes
- Progression routes & creating opportunities
- The current climate for Patient Leadership
Session 4 -
Reflections and Next Steps
- Reflections on the programme
- Exploring issues in more depth
- Your next steps
- Your learning and support requirements
Further learning and support opportunities
Previous participants have decided to take part in continuing action learning sets to explore the issues they face. We are also developing a ‘Patient Leadership Network’ and will be discussing the process of this with you, to help co-design its functions. We also run this programme for organisations or health systems ‘in-house’ and/or help run tailored programmes. You can learn more on our services page.
