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Patient as Partners for Change

When Elephants Fight: How patient engagement could help the Junior Doctor dispute - 18 January 2016
Patients and Data: Changing roles and relationships - 25 August 2015
The Rep Trap: The Catch 22 of being a patient representative - 24 August 2015
Beyond Us and Them: The role of patients in governance and improvement - 24 August 2015

Patient Leadership

Hole in the Policy Bucket – Patient Voice in Decision Making - 24 January 2023
Activism and the Ego – how to deal with frustration about lack of change - 11 January 2022
Patient Directors –The Next Step in The Patient Revolution - 27 April 2021
Australia and New Zealand Consumer Health Forum interview - 30 March 2021
Reflections on Patient Leadership - 30 March 2021
Leading from every angle except the top…Participating in the Patient Leadership Training Programme (Guest Post) - 8 March 2021
Patient Leadership is elitist: Discuss - 5 February 2021
Trying to Model Patient Leadership Behaviour – a 2021 resolution - 31 December 2020
2020: A Good Year For The Roses (and for Patient Leadership) - 13 November 2020

Poetry

Bug Man: Different sorts of poems about mental illness - 30 March 2016

Reflections on being a Patient Director

David Gilbert: Patient as expert - 24 January 2016
The Letter: How a Patient Director can help integration - 19 July 2015

Stories from my own experience

Car parking is a clinical quality issue - 25 June 2015

Uncategorized

Not Dead Yet: why we should use the word ‘endurance’ rather than ‘resilience’. - 23 September 2021
Patient Leadership is elitist: Discuss - 5 February 2021
You have to be three times as good... Michael Seres - 1 June 2020
Patient Leadership is Dead – Long Live Patient Leadership (a sideways look at Covid) - 14 April 2020
Patient Leadership Could Help Solve Workforce Issues - 30 November 2019
From Job-Job to Rock n’Roll-Role – The Sussex Model of Patient Partnership - 23 November 2019
The Patient Will See You Now - Small steps towards valuing yourself - 14 November 2019
Valuing What We Bring - an open letter to NHS England - 16 October 2019
Join The Docs - A patient perspective on integration - 19 August 2019
The Patient Revolution - why I wrote the book - 28 June 2019
Simple Is Not Easy - why changing stuff in the NHS can be so damn hard... - 18 June 2019
Rethinking Engagement - 7 April 2019
Sometimes A Man - Reflections of a Patient Director - 7 March 2019
ReWrite - Creative Approaches to Engagement - 29 October 2018
The Weakness In Me (is no weakness at all) - a message for World Mental Health Day - 7 October 2018
Asking The Wrong Question: 'How Can People So Cheerful, Talented and Beautiful Kill Themselves?' - 29 July 2018
ReVerse - How poetry can make the NHS better - 27 May 2018
Improvement - It's Bloody Hard Work! - 4 May 2018
Don't Be Scared To Show You Care - how to respond to a loved one with mental health problems - 15 April 2018
The Re-Balancing Act – recent mental health problems, 'recovery' and living in a mad world - 12 April 2018
A personal message to friends and colleagues - 2 April 2018
ABG - Three Ways I Try To Cope - 26 March 2018
Another Year of Working on What Matters - a Patient Director Healthcheck - 17 February 2018
Tangled - a modern tale about the NHS Crisis - 6 January 2018
The Gang Is Still Here - Why 2017 was the year of Patient Leadership - 27 December 2017
Beyond The Asylum Mentality – why now is the time for dialogue in mental health - 14 December 2017
Throwing a Sickie - why I am pleased to have been honest - 6 December 2017
Hugs and Drugs - The limitations of 'mental health awareness' - 8 October 2017
When My Words Went Elsewhere - true co-production across arts and health - 24 September 2017
Patient Leaders – what does that mean? - 14 September 2017
The Broken Compass – Personal reflections on control, meaning and choice in mental health - 25 August 2017
FAQu - some answers that patient partners can use when they get asked the same old questions - 18 August 2017
The Road From Nowhere – How Patient And Carer Partners Are Changing Healthcare - 29 July 2017
What Matters Matters – How my psychiatrist got it right (after so many got it wrong) - 9 July 2017
Happy Birthday Me - Musings of a Two Year Old Patient Director - 9 June 2017
It's About Time - why we need a 'slow-health movement' - 25 May 2017
Let's Talk About Death - breaking the taboos that surround suicide - 14 May 2017
For My Tired Friends - don't give up! - 4 May 2017
Let's (Not) Talk About Depression - 29 April 2017
It's Not All About You - why we need new stories about healthcare - 17 April 2017
The Forgotten - how non-clinical staff are the key to a better NHS - 5 April 2017
What's Stopping You Appointing A Patient Director? An open letter to all healthcare organisations - 23 March 2017
When Elephants Fight: Time for honest discussions (with patients and citizens) about the NHS - 14 February 2017
This Coldest Day - testimony for a kind soul - 12 February 2017
The Jewel Merchants - a parable for healthcare - 27 January 2017
What's Your Dog? Dealing with 2017 and all that - 8 January 2017
A Touch On The Arm: returning to work after mental health problems - 21 December 2016
How To Be Unhappy (and why we should be) - 17 November 2016
If I Still Scream - Three Reasons Why Trumpism Hurts - 10 November 2016
Let's Talk About Power - Here Come The Patientistas - 19 October 2016
The Difficult Art of Returning to Work after Mental Health Problems - 9 October 2016
Gazza's 'moment of madness' ... And mine - 17 September 2016
The Hedgehog - What happens when policy making is driven by fear - 16 September 2016
Dear Friend - a letter to Patient Leaders - 14 September 2016
Is It Worth It? - 21 August 2016
Say It: I Still Have Mental Health Problems - 19 July 2016
What If? Patients as Partners for Change - 18 June 2016
Patient As Refugee - 30 May 2016
My Imperfect Blog - How to be a good enough Patient Director - 15 May 2016
Junior Doctors and the Dishwasher Dispute - 28 April 2016
Patient and Public Engagement for Real: What we are doing at the Sussex MSK Partnership - 23 April 2016
What Does a Patient Director Do? - 9 April 2016
Stop Kicking The Cat: How patients can help shift the rule-bound culture of the NHS - 13 February 2016
Why Do You Do? The real question you need to answer - 30 January 2016
Simple Isn't Easy - changing the way the NHS communicates with patients - 11 January 2016
Blame It On The Wine: Daring to talk about the future of the NHS - 4 December 2015
How Real Can You Be? (Or: the director who cried in the toilet) - 24 October 2015
Five a day (plus one): Small ways we can all contribute to a better healthcare culture - 17 September 2015
A Digital Idiot's Thoughts – and a few other random reflections - 11 September 2015
Slow Down: A paradoxical way to transform healthcare services - 6 September 2015
The Hawk: Being clear about what I came here to do as a Patient Director - 31 August 2015
NHS Survival: Why I won't be joining the club (yet) - 20 August 2015
Patients and Pastries Included: Why we need partnership in policy making - 31 July 2015
Getting Serious: How a Patient Director can help focus the NHS on what matters to patients - 18 July 2015
Good Death, Bad Death: Notes for my mum and dad - 14 July 2015
Being Weird: The Plight of Patient Leaders - 4 July 2015
Integration: what a Patient Director could do to help - 24 June 2015
In Through Out - my mental health poetry journey - 14 June 2015
Being Valued: What I learned during my first week as a Patient Director - 9 June 2015
The Patient's Dozen - What Matters to Patients and Carers - 14 May 2015
Patient as Hero - 3 May 2015
Paying the Price: The Emotional Labour of Patient Leadership - 26 April 2015
Seven Things that Patients Bring: The Benefits of Patients as Partners for Change - 22 March 2015
I Should Co-Co: time for patients to say no - 17 February 2015
No More Eddies: Hitting the Suicide Target and Missing the Point? - 4 February 2015
Beyond Them and Us: How Patients Can Help Improve Healthcare - 27 January 2015
The Engagement Industry - 22 January 2015
Just In Case: Patient-Led Solutions to the A&E problem - 7 January 2015
Patients As Pus: Why the discharge process needs to change - 16 December 2014
The Rep Trap - 5 December 2014
We Are All Patients. Yes And No. - 28 November 2014
Thankyou Mandy et al - How small acts of kindness from non-clinical staff helped me recover from mental health problems - 4 November 2014
Patients and Data – Changing roles and relationships - 26 October 2014
No More Lazy Thinking - Let's get clear on the benefits of patients being partners for change - 24 October 2014
Ideas From Patients - how patient-led innovation could work - 20 October 2014
The Future Patient – A manifesto for patient-led health and healthcare - 4 October 2014

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