Who we are

We are a network of experts who have come together out of a shared belief that the best care for patients results from engaging patients and the public in decision making - about their own care and treatment and in commissioning, planning and designing services.

David Gilbert

Director

David has 25 years experience in the field of health, patient and public engagement (PPE) and patient-centred improvement work across the UK and internationally. Read more...

He was PPI Project Director at Croydon PCT focusing on ‘quality and commissioning' and developed the Engagement Cycle - a model for patient and public engagement in commissioning - on behalf of the Department of Health.

He was co-founder and Director of the NHS Centre for Involvement, Head of PPI at the Commission for Health Improvement (CHI) and has worked at the Office for Public Management (OPM), King's Fund and Consumer's Association.

David has led numerous organisational development and leadership initiatives and dozens of focus groups, deliberative events and workshops with patients, carers and the public and health professionals. Clients include the Young Foundation, Council for Healthcare Regulatory Excellence, Department of Health, Welsh Assembley, Healthcare Commission and numerous local NHS organisations (see under 'clients')

David is an Associate at the Centre for Innovation in Healthcare Management at Leeds University and is an External Advisor to the CLAHRC in NW London. He was on the DH and Arts Council panel for an Arts and Health Prospectus and writes poetry. David is an ex-mental health service user, was Chair of a local mental health charity and supports Leeds Utd.

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Mark Doughty

Associate

Mark has 23 years experience working in the learning, development and health fields. His professional work has been guided by his experience of living with and managing Poly Rheumatoid Arthritis. Read more...

He has experience of working as a Learning and Development Manager in Primary Care where he was responsible for setting up and managing a L& D function for 2300 staff. He had a number of key responsibilities including; operating as an internal OD consultant to the CEO and Directors; introducing key aspects of the Learning Organisation model, designing and implementing staff and management development schemes, and introducing Performance Management processes.

Mark is also a director of a business that supports people with illness, injury and disability (IID's) to self manage and live well with their condition He has successfully designed and facilitated a number of award winning personal change programmes for organisations such as Arthritis Care, MS Society, Inland Revenue, Custom & Excise, Barclays, UNUM and Government DWP. All his programmes have been independently evaluated.

His work with Arthritis Care built on and developed the work of their ‘Challenging Arthritis (CA) programme. CA became a model for the development of The Expert Patients Programme.

He has consulted with and advised organisations in Denmark, Holland and Switzerland on how to implement successful change programmes for people with IID's. He has been a Trustee of Arthritis Care and an Associate with The Employers Forum on Disability (EFD) and a member of the Lay led Self Management Network

He is also an accredited executive coach and recently graduated from the School of Social Entrepeneurs where he developed a project to enable organisations to unlock the leadership potential of their staff with IID's.

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Henie Lustgarten

Associate

Henie Lustgarten has 28 years of international experience in the health and management field. She has worked in the US, UK, Germany and Japan and is interested in user involvement as a key to service improvement in health care. Read more...

She worked in the UK for 6 years where she was a senior leader of ‘turnaround’ teams in the Modernisation Agency that incorporated PPE to support organisational culture change; the Associate Director of the Transformation Team at Barts and the London NHS Trust where she led projects to modernise services for patients, carers and clinicians; and senior fellow in health at the Office for Public Management (OPM) where she led many projects linking PPE with OD work. Her work included designing and conducting qualitative studies and OD interventions to support patient-focused health services. She led numerous patient involvement projects for hospitals, PCT-hospital systems, voluntary agencies, and service networks that brought users into decision-making processes. Henie also works with the Health Foundation’s Co-Creating Health demonstration project for self-management support where she leads the commissioning and learning work.

Henie’s work often brings patients, clinicians, senior staff and boards together to understand other perspectives and align working arrangements and organisational culture accordingly. She develops workshops, conducts focus groups and designs simulation events that involve patients in the centre (literally in large rooms) as decision-makers. She also coaches senior managers and clinicians.

In the US, Henie developed a managed care programme/HMO for poor patients in the Bronx where she provided leadership to the commissioning, marketing, finance and IT functions. She consults with a large medical centre on case management systems and care for people with complex needs, including the homeless and people with multiple long term conditions and behavioural health challenges.

Henie also taught undergraduate business and management for the University of Maryland in Europe and Asia and is certified in MBTI.

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Jill Brunt

Honorary Advisor

Jill is Chief Executive of the National Open College Network (NOCN), the leading credit-based Awarding Body in the UK. Read more...

She was a Director of the NHS Centre for Involvement and Acting Director of the Widening Participation in Learning Strategy Unit at the Department of Health.

Jill began her career as a Speech and Language Therapist and worked for a number of years in the Sheffield health community. She moved into community development and adult education, before taking up a post at the Northern College of Adult Residential Education, where she stayed for 10 years. After this, Jill became a Senior Research Fellow in the School of Health and Related Research at the University of Sheffield, later becoming Director of Teaching and being actively involved in multi-professional learning programmes and the re-design of the undergraduate medical curriculum. Jill was invited to be part of the NHSU Design and Implementation Team in 2002; she then became Regional Director for NHSU Yorkshire and Humber and led the Patient and Community Engagement Team.

She was a founder member of the National Centre for Involvement at the University of Warwick. Constantly active in community groups, Jill has been Honorary Chair of Sheffield Children's Partnership, a member of the Children's Fund Working Group and been involved in many regeneration social inclusion groups. Together with local and European MPs she has set up a Women and Public Life Forum and supports women from diverse backgrounds who wish to become active in public life.

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Harry Cayton

Honorary Advisor

Harry Cayton has spent many years promoting patient, service user and citizen engagement in health and healthcare. Read more...

He has written widely on health policy and has published over 40 papers and book chapters, his most recent, Health Citizenship; abandoning the policies of sickness was published by The Smith Institute (2008). His co-authored book for people with dementia and their carers has been in print for 10 years and is published in eight languages. He is a regular speaker at national and international conferences and in 2009 will chair the World Health Executives Forum.

Harry is chief executive of the Council for Healthcare Regulatory Excellence, chair of the National Information Governance Board for Health & Social Care, an advisor to Macmillan Cancer Support and The Health Foundation and a trustee of Comic Relief.

Contact Harry

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